I have had a debilitating immune disorder called ME/CFS since 2002, and my two sons both got it two years later, at ages 6 and 10. One is now recovered after 10 years of mild illness. The other son, at 21, still has ME/CFS, as well as Lyme disease plus two other tick infections.He and I have both found many treatments that help us to function somewhat, though we both still live with many symptoms and limitations.
Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a serious immune system disorder that causes dysfunction in almost every bodily system and affects between 1 - 2 million Americans, including many children and teens. For more information, see my article: Chronic Fatigue Syndrome: An Invisible Illness.
To read more about how we live our lives in the face of these challenges, check out my blog, Living with ME/CFS.
I have also written some essays about my journey with chronic illness: